
How does your pain measure up?
Living with haemophilia often goes hand in hand with experiencing some sort of pain - whether this is pain from needles, pain from bleeds, or pain in your joints. This pain can be exhausting, which is something that people who’ve not experienced it struggle to understand.
To get a feel of how this pain affects you and your day-to-day life, we’d love you to have a go at the poll below. Once you’ve submitted your answers, you’ll be able to see what others in the community have said - by revealing results from published literature.
POLL TIME!
01
03
Have you experienced acute or chronic pain in the last 12 months*?
Select one of the following:





02
03
Which of the following memes can you relate to?
Select all that apply to you:












03
03
Has pain ever interfered with any of the following?
Select all that apply to you:










Pain can really take its toll at times, but you can ask for better pain management strategies
Review the tips below for talking to your haemophilia team about pain management strategies
It’s time to ask for better pain management!
Living with pain often results in tiredness, frustration and anger, making it difficult to effectively communicate to those that can help. On top of this, pain is subjective – the tools used to measure pain might not be optimal and may differ from the reality of what you are experiencing.
Because of this, it is important that you, and others living with haemophilia, communicate effectively with your healthcare team so you can work together to achieve better pain management.
The following checklist provides some useful tips on how to successfully ask for a management plan that works best for you:

Next appointment a while away?
Let us give you a reminder of these tips!
When can we remind you about pain management?

References
- Noone D et al. Occurrence and impact of pain among patients living with hemophilia: An analysis from the patient reported outcomes, burdens and experiences (PROBE) study, (2018), Oral Presentations (OR7). Haemophilia, 24: 23–31. doi:10.1111/hae.13392.
- Witkop M et al. Am J Hematol 2015; 90(S2): S3–10.