Living with haemophilia often goes hand in hand with experiencing some sort of pain - whether this is pain from needles, pain from bleeds, or pain in your joints. This pain can be exhausting, which is something that people who’ve not experienced it struggle to understand.
To get a feel of how this pain affects you and your day-to-day life, we’d love you to have a go at the poll below. Once you’ve submitted your answers, you’ll be able to see what others in the community have said - by revealing results from published literature.
Review the tips below for talking to your haemophilia team about pain management strategies
Living with pain often results in tiredness, frustration and anger, making it difficult to effectively communicate to those that can help. On top of this, pain is subjective – the tools used to measure pain might not be optimal and may differ from the reality of what you are experiencing.
Because of this, it is important that you, and others living with haemophilia, communicate effectively with your healthcare team so you can work together to achieve better pain management.
To get you started, why not show others what it's really like to live with chronic pain? Visit the meme generator to create your meme
1. Noone D et al. Occurrence and impact of pain among patients living with hemophilia: An analysis from the patient reported outcomes, burdens and experiences (PROBE) study, (2018), Oral Presentations (OR7). Haemophilia, 24: 23–31. doi:10.1111/hae.13392.
2. Witkop M et al. Am J Hematol 2015; 90(S2): S3–10.
Just to let you know, poll results are not stored, and no additional data are collected. Results shown after completion of poll have been published in literature and do not reflect the user’s responses.1,2x