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Bleeds

WHAT A PAIN IN THE ELBOW, KNEE, ANKLE, HIP...

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The saying goes that there are two certainties in life: death and taxes. And when you’ve got haemophilia, there’s a third… bleeds.
Bleeds can happen for no reason at all, even after you’ve taken treatment and been extra careful. From the swellings that make it hard to even get out of bed, to the countless plans with mates you’re forced to cancel, there’s no two ways about it – bleeds are 💩
Well, it doesn’t have to be like this. The time has come for a bleed-free life – read on to find out more!
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Can you guess how often people on prophylaxis still bleed?

Tell us how many bleeds you've had over the past year to reveal the answer.

The big deal with joint bleeds

Every joint bleed matters. Regardless of how often they happen, joint bleeds can have serious long-term consequences for those particular joints, like:2-6

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Joint Mobility

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Pain

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Arthritis

BUT it doesn’t have to be this way 👍

With haemophilia care advancing so rapidly, there might be things that you and your healthcare team can do to help you become bleed-free.

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Worried about having bleeds while taking treatment?

Talk to your healthcare team – they can help you find a way to get them under control.

Bleeds can have an impact on your life in more ways than you might think. Watch this video to hear what Jeffrey, a psychotherapist with haemophilia, has to say about bleeds…

DREAMING OF A LIFE FREE OF HAEMOPHILIA-RELATED BLEEDS? Here’s what you can do:

Contact a patient organisation for support on becoming bleed-free

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OR

Talk to your healthcare team about other treatment plans

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Read More

Dating is like bleeds. You never know what’s going to happen.

Dating. It’s exciting. But it can also be a minefield. Add haemophilia to your dating bio and, well, that can make for an awkward conversation. From the pre-date nerves, to getting to know someone on a personal level… and a physical level, dating is full of hurdles to overcome.

Protecting your mental wellbeing

Living with haemophilia can be full of ups and downs: some days you might be feeling fine whereas other days may leave you feeling pretty low. It’s okay to have these down days – you’re only human after all!

Exercise: Your ally against haemophilia-related bleeds

Regardless of what your reasons for avoiding exercise might be, it definitely has benefits both for your haemophilia and your health generally.

The art of travelling with haemophilia

How does your pain measure up?


References

1. Kruse-Jarres R et al. Poster 175. Presented at the 11th Annual Congress of the European Association of Haemophilia and Allied Disorders, 7–9 February 2018, Madrid, Spain.

2. Soucie JM et al. Blood 2004; 103: 2467–2473.

3. Knobe K, Berntorp E. J Comorb 2011; 1(1): 51–59.

4. duTreil S et al. J Blood Med 2014; 5: 115–112.

5. Auerswald G et al. Blood Coagul Fibrinolysis 2016; 27(8): 845–854.

6. van Vulpen L et al. Haemophilia 2018; 24(6): 44–49.